Following a walk on Sunday that 17-year-old Hadiyyah Mohamed and the Precious Angels Charity (PAC) organised to raise awareness of Rett Syndrome, the Pan-American Health Organisation/World Health Organisation (PAHO/ WHO) promised to partner with her.
In his presentation, Dr. William Adu-Krow said that they would “work with Hadiyyah and team to make sure that Rett becomes one of the syndromes that we would start working with seriously to bring it to the fore.”
Rett Syndrome is a rare genetic neurological and developmental disorder that affects the way the brain develops. It causes a progressive loss of motor skills and speech.